The Carer Poverty Coalition, a group of 130 national and local organisations campaigning to end poverty amongst unpaid carers, has published a manifesto calling on all political parties to commit to reviewing Carer’s Allowance and other means-tested benefits available to carers. As part of the review, the Coalition also want an examination of the financial … Read more
CQC and Healthwatch England has launched a new campaign aiming to amplify the voices of people using care services. ‘Share for Better Care’ has a particular focus on collecting experiences from people from seldom-heard communities because it is known these individuals are more likely to experience poorer care and inequalities. These communities include: The campaign … Read more
The American Food and Drug Administration (FDA) has announced an advisory panel will be convened to scrutinise data on the safety and efficacy of new Alzheimer’s drug donanemab. Donanemab had been expected to be approved by the FDA imminently, but their decision is now delayed until later this year. UK regulators (along with their European … Read more
Deafinitely Theatre has created ‘The Promise’, a stage show that follows the story of a family navigating deafness and dementia. The creation of ‘The Promise’ has been in conjunction with deaf families experiencing dementia and scientists studying dementia and its impact on deaf people. It has been two years in the making, led by Paula … Read more
A five-year project to study blood tests for Alzheimer’s disease and other forms of dementia has been announced, funded by the Blood Biomarker Challenge (Find out more about this here: https://journalofdementiacare.co.uk/blood-biomarker-challenge-for-dementia-diagnosis). Led by University College London (the ADAPT study) and the University of Oxford (the READ-OUT study), a range of blood tests will be conducted … Read more
Skills for Care has dedicated April to Celebrating Social Care, their yearly campaign to highlight the great work being done in the sector. Skills for Care has run this campaign every year since 2022, and encourage participation from across the social care sector. You can find out more and get involved here: https://www.skillsforcare.org.uk/news-and-events/Spotlight-on/CelebratingSocialCare.aspx
elearning for Healthcare, in partnership with NHS England, has shared an updated learning resource to support knowledge and understanding of the management of dysphagia. The Dysphagia Guide e-learning resource has been co-developed with care home staff but is also relevant to other health and social care staff, informal carers and people with dysphagia. The Guide … Read more
Scott Mitchell, husband of the late Dame Barbara Windsor, has been appointed People’s Champion of the Dame Barbara Windsor Dementia Mission. The Dame Barbara Windsor Dementia Mission was launched in 2022 by the UK government in memory of Dame Barbara who died of Alzheimer’s disease in 2020. The Mission aims to develop innovative research tools … Read more
Care Talk and the Palliative and End of Life Care Awards have published a report, following a roundtable discussion they held in February 2024, entitled: ‘Living a Good Life at Every Stage – The Role of Palliative and End of Life Care in Enabling a Good Death’. The report documents knowledge shared by 15 sector … Read more
The Together Project, a national charity that aims to boost wellbeing, reduce loneliness and foster community engagement through intergenerational experiences, has published updates on its impact and work in 2023. The Together Project encompasses different work-streams, which often include involvement from people with dementia. It has published the following documents: You can read all the … Read more