33 MP’s have attended an event in parliament to hear about Dementia UK’s ‘Fix the Funding’ campaign. They heard from people affected by dementia, as well as Chief Admiral Nurse and Dementia UK CEO Hilda Hayo and her Admiral Nursing colleagues, about why the NHS Continuing Healthcare (CHC) funding process needs to be reviewed. Dementia … Read more
Findings from the 2023 British Social Attitudes survey have been published by the Nuffield Trust and The King’s Fund. The survey shows that only 24% of the public are satisfied with the NHS and only 13% are satisfied with social care. These are the lowest levels of satisfaction recorded since the survey began in 1983. … Read more
Meeting Centres Scotland has been officially launched to promote community-driven dementia care. The Meeting Centres model was pioneered in Amsterdam 30 years ago. Scotland’s first meeting centre opened in 2019 in Kirriemuir, and Scotland now has 19 Meeting Centres that aim to increase confidence and wellbeing for people with dementia and their families. Meeting Centres … Read more
Dr Carol Sargent, founder of Sargent Group Consulting and a specialist in inclusive tourism for people living with dementia, has announced Hoe Grange Holidays as the first UK accommodation provider accredited by her as dementia inclusive. Dr Carol Sargent says: “The accreditation scheme was inspired by my personal experience with taking both my mum Liz … Read more
The Care Quality Commission (CQC) has announced that it is beginning the development of a dementia strategy. CQC say this will be a cross-sector strategy that will be shaped by a central question – how can CQC use its role to improve the experience of using health and social care services for people living with … Read more
The Carer Poverty Coalition, a group of 130 national and local organisations campaigning to end poverty amongst unpaid carers, has published a manifesto calling on all political parties to commit to reviewing Carer’s Allowance and other means-tested benefits available to carers. As part of the review, the Coalition also want an examination of the financial … Read more
CQC and Healthwatch England has launched a new campaign aiming to amplify the voices of people using care services. ‘Share for Better Care’ has a particular focus on collecting experiences from people from seldom-heard communities because it is known these individuals are more likely to experience poorer care and inequalities. These communities include: The campaign … Read more
The American Food and Drug Administration (FDA) has announced an advisory panel will be convened to scrutinise data on the safety and efficacy of new Alzheimer’s drug donanemab. Donanemab had been expected to be approved by the FDA imminently, but their decision is now delayed until later this year. UK regulators (along with their European … Read more
Deafinitely Theatre has created ‘The Promise’, a stage show that follows the story of a family navigating deafness and dementia. The creation of ‘The Promise’ has been in conjunction with deaf families experiencing dementia and scientists studying dementia and its impact on deaf people. It has been two years in the making, led by Paula … Read more
A five-year project to study blood tests for Alzheimer’s disease and other forms of dementia has been announced, funded by the Blood Biomarker Challenge (Find out more about this here: https://journalofdementiacare.co.uk/blood-biomarker-challenge-for-dementia-diagnosis). Led by University College London (the ADAPT study) and the University of Oxford (the READ-OUT study), a range of blood tests will be conducted … Read more