Understanding the lived experienece of Lewy body dementia
Lunchtime Sessions 1
17 November, 2026 1:20 – 2:05 pmElectronic Posters
Rachel Thompson
Consultant Admiral Nurse, Lewy body dementia
Lewy Body Society & Dementia UK
Summary
Lewy body dementia (LBD) is the second most common cause of dementia which accounts for approximately 15% of all those with dementia. It is a complex and challenging condition characterised by hallucinations, fluctuations in cognition, sleep disturbance and Parkinsonism. This often presents challenges in accessing an accurate diagnosis, appropriate care and treatment. Both people with LBD and their family carers often experience poor mental and physical health, reduced quality of life and high levels of strain/burden are identified amongst carers.
The Lewy Body Society was founded 20 years ago with the aim to increase much needed awareness, better diagnosis and support for those affected by Lewy body dementia. It also funds research to help identify the causes of Lewy body dementia and how it can be effectively identified and treated.
Despite progress, Lewy body dementia remains one of the least well-understood forms of dementia, with many families still facing delays in diagnosis and access to specialist support.
This year as part of its 20th anniversary, the Lewy body Society commissioned a film exploring the lived experience of Lewy body dementia. This film provides a unique insight into the symptoms, their impact on people with Lewy body dementia and their family carers and can be used as an educational resource to increase understanding amongst professionals