End of Life

This presentation explores what matters most in supporting people with dementia at the end of life, and how care workers can be better prepared and supported in delivering palliative dementia care. Drawing on scoping conversations with care workers, people living with dementia, and family/friend supporters, we highlight lived and practice-informed perspectives on care priorities, communication,…

End-of-life preferences remain underexplored among people living with dementia, despite their profound personal importance. Advance care planning is widely promoted across healthcare systems as a mechanism to document wishes and guide decision-making. However, its implementation is inconsistent—particularly in community settings—and frequently fails to include the direct voice of the individual. Instead, decisions are often shaped…