Evaluating the needs of carers living with dementia. Royal British Legion Admiral nurses provide person centred support.
Parallel 6
18 November, 2026 3:30 – 4:40 pmFamily Carer Wellbeing
Jo is a RN and has been nursing for 30 years. She has worked in a range of settings including hospital, community and voluntary sectors. She has specialised in caring for people living with chronic conditions primarily in neurology, palliative care and dementia specialisms. Jo has been working as an Admiral Nurse for over 5 years.
Jo is a Queens Nurse, with a BSC (Hons) in Advanced nursing practice and a MSC in mental health science. She has a keen interest in research and education around dementia and living with dementia. She is actively involved in education and support of carers and professionals around grief, palliative care in dementia.
Lucy is an RMN, having been in nursing 31 years. She has worked in range of settings including hospital, community and prisons and most recently as an Admiral Nurse for 14 years.
She is a Queen’s Nurse, holds a masters in Medical Ethics and Law and has published articles and book chapters on topics as diverse as Truth Telling and Therapeutic Lying in Dementia, Suicide Risk in Informal Carers of PLWD, Admiral Nurse role in Prisons, Delayed onset PTSD as potential cause for behaviours designated BPSD and Apathy in Dementia. She has a keen interest in service improvement and research.
Lucy Chamberlain
Lead Admiral Nurse
Royal British Legion
Lucy is an RMN, having been in nursing 31 years. She has worked in range of settings including hospital, community and prisons and most recently as an Admiral Nurse for 14 years.
She is a Queen’s Nurse, holds a masters in Medical Ethics and Law and has published articles and book chapters on topics as diverse as Truth Telling and Therapeutic Lying in Dementia, Suicide Risk in Informal Carers of PLWD, Admiral Nurse role in Prisons, Delayed onset PTSD as potential cause for behaviours designated BPSD and Apathy in Dementia. She has a keen interest in service improvement and research.
Summary
The Royal British Legion Admiral Nurse Service have been utilising the Adult Carer Quality of Life (ACQoL) measure to assess Carers’ perceptions of their caring role and provide Admiral Nurses with insight into interventions required and be able to evaluate their impact by comparing baseline to subsequent periodic repeating of the measure.
Feedback from Carers highlighted that their experience of completing the quality of life questionnaire (ACQoL) was burdensome, difficult to understand and apply to their caring situation. Similarly, Admiral Nurses reported the ACQoL to be time consuming to complete and ineffective in providing meaningful, clinical data to both inform care planning and measure impact of Admiral Nurse intervention. The RBL Admiral Nurse Service consequently identified the need for an improved method to better understand the needs of those they serve.