Family Carer Involvement in Dementia Inpatient Wards: An Ethnographic Study of Practice, Culture, and Decision-Making
Parallel 6
18 November, 2026 3:30 – 4:40 pmFrom Crisis to Connection: Evolving Dementia in Care Mental Health Settings
Dr Rosie Dunn
Research Associate
The University of West London (UWL)
Summary
Dementia Mental Health Wards (MHWs) provide specialist care for people with dementia during acute mental health crises. Although carer involvement can improve outcomes and reduce hospital stays, carers often report exclusion from decision-making, and guidance for involving carers remains limited. This ethnographic study explored how carers are included in practice across three UK dementia MHWs. Findings showed that ward cultures were shaped by tacit, unspoken rules embedded within routines, environments, and traditions, influencing how carers could communicate and engage with staff. Expectations about carers’ roles were conveyed informally through everyday practices rather than explicit explanation. While these rules were often justified as necessary for maintaining safety and managing risks, carers typically learned them through experience. Expectations frequently shifted during discharge planning, requiring carers to adapt quickly. Findings highlight the need for interventions that support collaborative working, clarify carers’ rights, and better prepare carers during admission and discharge processes.