We will describe: doing the homework: how we know there is a need; getting stakeholders on board getting up and running: teething problems; sharing the news giving younger people with dementia and carers a voice and getting involved locally: meeting senior council officials; carers co-presenting at conferences co-producing resources for paid staff: raising awareness, myth…
Understanding The Emotional And Practical Impact Of A Young Onset Dementia Diagnosis. A diagnosis of young onset dementia can have a profound emotional and practical impact, not only on the person diagnosed, but also on partners, family members, friends and colleagues. Personally I struggled to accept the diagnosis at first. I was still working,…
Peer support can play a crucial role in helping people affected by young onset dementia feel understood, connected and less isolated, yet little is known about how well current provision meets their needs. To address this, the Young Dementia Network conducted a four week survey to explore experiences of peer support among people living with…
A short narrative of the Oxleas YOD service (we presented last year), how the service came to be and why how it has continued to survive, often through short-term contract extensions and not being afraid to learn how to do new things. Continuing with last year’s momentum of creative thinking and bold professional curiosity, both…
This presentation will shine a positive light onto palliative care and how this support can improve quality of life. Inviting someone living with young onset dementia to share their experience of palliative care and how it has helped them following their diagnosis to remain independent for as long as possible and engage in local support….
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