Individuals/personal accounts

  • Learning about the lived experience of dementia

    How can we beging to understand how it feels to have dementia? Rakel Berenbaum gives some pointers to the increasing body of resources and materials which can help us learn Author/s: Rakel Berenbaum For the full article please see the PDF download linked to the right. The full JDC archive is available if you subscribe....

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  • Making sense of dementia through metaphor

    People with dementia are beginning to take the lead in providing essential insights into what they are experiencing, and they often express those insights in the powerful language of symbol and metaphor, as John Killick explains Author/s: John Killick For the full article please see the PDF download linked to the right. The full JDC…...

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  • Wadebridge Memory Bank: a psychoeducation group

    Mike Bender, Gilly Constance and colleagues have developed a long-term support and self-help group for people with a diagnosis of dementia. In this first of two articles, they describe setting up and running the group, outlining perceived benefits and research issues Author/s: Mike Bender, Gilly Constance For the full article please see the PDF download…...

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  • Real lives…

    Comment by Linda Clare Author/s: Linda Clare For the full article please see the PDF download linked to the right. The full JDC archive is available if you subscribe....

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  • Getting it right for me

    Falkirk: Ross Campbell, who has early onset dementia, offers his perspective on provdiing a suitably wide range of services Author/s: Ross Campbell For the full article please see the PDF download linked to the right. The full JDC archive is available if you subscribe....

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  • Dates never to be forgotten as early Alzheimer’s developed

    Anthony Pollen presents a moving and highly personal account of the difficulties he and his wife Ruth, who was diagnosed with early onset Alzheimer’s disease when only 47 years old, have faced in getting employers, officials and health professionals alike to understand Author/s: Anthony Pollen For the full article please see the PDF download linked…...

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  • ‘Live until you die’

    Chicago, USA: Daniel Kuhn reports on the American Alzheimer’s Association national educarion conference, in which people with dementia played a prominent role Author/s: Daniel Kuhn For the full article please see the PDF download linked to the right. The full JDC archive is available if you subscribe....

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  • Edith’s weekend away: issues for advocates in dementia care

    The advocate’s role is avowedly to represent the interests of their client – but sometimes, as Sally Wells reflects, knowing the client well suggests a more flexible approach Author/s: Sally Wells For the full article please see the PDF download linked to the right. The full JDC archive is available if you subscribe....

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  • Precious experiences beyond words

    Rosemary Clarke describes how the Coma work course helped her to see that her task was not to try to reach her mother but to enable her mother herself to reach out Author/s: Rosemary Clarke For the full article please see the PDF download linked to the right. The full JDC archive is available if…...

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  • Dementia described from the inside

    In the first of two articles exploring accounts of dementia by people with direct experience of the condition, John Killick looks at two books of very different kinds, both written by men with a diagnosis of early onset Alzheimer’s disease. Author/s: John Killick For the full article please see the PDF download linked to the…...

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