A play about the impact of dementia on a Jamaican-British family is coming to the Bush Theatre in Holloway, London. ‘Miss Myrtle’s Garden’ will run from 31 May to 12 July 2025 and has been described as: ‘A wonderfully warm, witty, and life-affirming exploration into how we acknowledge the past as a means to confronting … Read more
Researchers at the University of Liverpool are looking for volunteers who are caring for a loved one with alcohol-related dementia to take part in a study. Participation involves an interview, either on Teams or via a phone call, to answer questions surrounding the chronological timeline of an unpaid carer’s experiences. For more information, please email … Read more
A research project from Heriot-Watt University in Edinburgh and charity Scottish Autism entitled ‘Autism, Ageing and Social Care’ has used creative methods to begin a wider conversation about the support that autistic people will need when they get older. The research team worked with autistic film-makers to create footage about the hopes, concerns and needs … Read more
Researchers at Liverpool John Moores University are looking for volunteers to participate in a postgraduate research project exploring the barriers faced – from a carer’s perspective – when trying to obtain a young-onset dementia diagnosis. Volunteers need to be/have been a carer for someone with young-onset dementia for at least six months and not currently … Read more
The Royal College of Occupational Therapists (RCOT) has announced the development of their new guideline: ‘Maintaining occupations and maximising independence while living with dementia’. The Guideline Development Group, which is made up of experts in dementia including occupational therapists, people diagnosed with dementia and their supporters, has drafted the scope and would like feedback from … Read more
DeNPRU (Policy Research Unit Dementia and Neurodegeneration) Exeter has published a report entitled ‘Living alone with dementia: a neglected inequality’. The report details that as many as one in three of all people with dementia live alone. It challenges the assumption that people with dementia will have a carer available, and highlights the lack of … Read more
The Care Workers’ Charity (CWC) has published a report following roundtables they held in November 2024 on the future of adult social care. The roundtables brought together care workers, people drawing on care, unpaid carers, care providers, commissioners and advocacy groups to examine the challenges facing the sector and ideas for reform. Karolina Gerlich, CEO … Read more
Following the premiere and cinema release of Grey Matter in 2024 https://journalofdementiacare.co.uk/greymatter it is now available to stream from Sky Store, Rakuten TV, iTunes, Google Play and Amazon. Grey Matter stars Stephanie Beacham as Peg, a lady living with Alzheimer’s disease. The film shows the challenges and triumphs of living with the disease and a … Read more
The National Institute for Health and Care Excellence (NICE) has published further draft guidance for public consultation that continues to not recommend Alzheimer’s treatments donanemab and lecanemab for use on the NHS. You can read more from NICE here: https://www.nice.org.uk/news/articles/second-consultation-launched-on-nhs-funding-for-alzheimer-s-treatments We covered the 2024 licencing and NHS use announcements on lecanemab here: https://journalofdementiacare.co.uk/mhra-licence-lecanemab-for-use-in-the-uk. The most … Read more
Skills for Care is again running ‘Celebrating Social Care’ throughout April. This campaign showcases the fantastic contributions of individuals working in numerous roles across social care. Skills for Care is encouraging everyone to share stories, shoutouts and celebrations. You can find out more here: https://www.skillsforcare.org.uk/news-and-events/Spotlight-on/CelebratingSocialCare.aspx