Dementia Carers Count share a collection of dementia carers’ experiences

Dementia Carers Count (DCC) has followed up their ‘What if…I’m not there to care?’ report (which we covered here: https://journalofdementiacare.co.uk/dcc-publish-their-2024-survey-findings) by sharing a collection of dementia carers’ experiences.  Dementia Carers Count brought this collection together having invited dementia carers to share their personal experiences of not having alternative care arrangements in place, their struggles to continue…

Housing LIN launch fifth intake of Future Leaders Programme

Housing LIN (Housing Learning and Improvement Network) has launched the fifth intake of their Future Leaders Programme.  Sponsored by Sovereign Network Group (SNG), this initiative aims to bring together up to 10 individuals (early-career professionals with no more than three years of experience in the housing and related sectors) who share a passion for improving housing…

RCEM report documents A&E experiences of people aged 75+ 

The Royal College of Emergency Medicine (RCEM) has published a report entitled ‘Care of Older People 2023-24’.   This report is part of the College’s Clinical Quality Improvement Programme which is in its second of three years. Using data from 24,865 patient experiences from 4 October 2023 to 3 October 2024 it shows 12+ hour waits…

CQC publish report looking at health and social care support for people with dementia in England

The Care Quality Commission (CQC) has published a report entitled: ‘Health and social care support for people with dementia’.  The report’s findings, which are based on engagement with people living with dementia, unpaid/family carers, professionals and providers (both NHS and social care), as well as analysis of a range of information CQC holds, includes:  The…

Alzheimer’s Society highlight common dementia symptoms 

The Alzheimer’s Society has used Dementia Action Week to highlight symptoms of dementia after finding, through their research, that one in ten people surveyed couldn’t name a common symptom of dementia.  The survey of 2,075 UK adults was conducted on behalf of Alzheimer’s Society by Yonder between the 30 April 2025 and 1 May 2025….

MSNAP extend deadline for lived experience artwork competition

The Royal College of Psychiatrists Memory Services National Accreditation Programme (MSNAP) has extended the deadline for entries to their artwork competition.   The competition is for people living with dementia and unpaid/family carers/care partners. Artwork will be featured in upcoming MSNAP publications.   You can download the form to accompany artwork (which also details the email address…

SMC reject donanemab for use in NHS in Scotland

The Scottish Medicines Consortium (SMC) has rejected new Alzheimer’s drug, donanemab, for use in the NHS in Scotland.    This aligns with the view of NICE (which we covered here https://journalofdementiacare.co.uk/nice-publish-further-draft-guidance-on-lecanemab-and-donanemab) when considering donanemab (and lecanemab) for use in the NHS in England and Wales. The reasons given by the SMC are similar to NICE.    Anyone…

Palliative and End-of-Life Care Commission publish first report

The Palliative and End-of-Life Care Commission has published its first report, entitled ‘Palliative Care and End-of-Life Care – Opportunities for England (Volume 1)’.  The report finds that access to high-quality palliative care is unevenly provided across the UK, and makes the case that everyone who has palliative care needs should be able to access well-resourced…

Blueprint for proactive and preventative digital care services published

‘Unlocking the Power of Proactive and Preventative Care Services – A practical blueprint for planning, implementing and scaling up’ has been published by a new national Commission led by the Association of Directors of Adult Social Services (ADASS) and the TEC Services Association (TSA).  The Commission engaged with 50+ social care leaders from local authorities…

Dementia UK publish 2025 Summer School programme 

Dementia UK has published their programme for their 2025 Summer School.  Running from 1-4 July 2025, the Summer School is a free annual event aimed at improving practice in and knowledge of dementia care.  Topics being covered in 2025 are diverse and include managing and assessing pain, young onset dementia, technology to support families and…