V for Life highlight Self-Advocacy Pack for vegetarians and vegans 

V for Life, the UK charity working on behalf of older vegetarians and vegans, has used Dementia Action Week to highlight their Self-Advocacy Pack.  The Self-Advocacy Pack has been designed to help vegetarians and vegans safeguard their diet and beliefs if they need to draw on care services.  V for Life say:  “Around 70 per…

New website launched to explore better end-of-life dementia care  

A new website – Dementia Journeys – has been launched to explore what better end-of-life dementia care looks like based on research.  Central to the website are stories from carers that were originally shared during an exhibition that ran at the Science Gallery, London from April-June 2024. The exhibition was created in response to Empowering…

John ‘Pops’ Hyde and his granddaughter raise awareness of dementia 

John ‘Pops’ Hyde and his granddaughter Ariana are using YouTube to raise awareness of dementia in a series of videos that are making headlines on national TV.  John was diagnosed aged 59 with frontotemporal primary progressive aphasia. John makes videos with his 10-year old granddaughter, Ariana, adding them to their YouTube channel.  You can watch…

Casey Commission Terms of Reference published 

Following the announcement in January that there will be an independent commission into adult social care chaired by Baroness Louise Casey (we reported on this here: https://journalofdementiacare.co.uk/uk-government-announce-casey-commission-into-adult-social-care), the UK Government has now published the Terms of Reference for the Commission.  You can read the Terms of Reference here: https://www.gov.uk/government/publications/independent-commission-into-adult-social-care-terms-of-reference/independent-commission-into-adult-social-care-terms-of-reference  Commenting on the Terms of Reference,…

Lewy Body Society award record research grant funding 

The Lewy Body Society has awarded almost £600,000 in research grants to the University of Cambridge, University of Dundee, University College London and Queen’s University Belfast for studies into Lewy Body Dementia.  Jacqui Cannon, Chief Executive of the Lewy Body Society, says:   “We are excited about the possibilities of these four research projects and what…

Hamberley Care Homes launches dementia strategy 

Hamberley Care Homes has launched a new Dementia Strategy entitled ‘Bringing Out the Best’.  The strategy, which has been co-produced with residents, families, and team members, is structured on a five pillars of care model.  David Moore, Head of Dementia at Hamberley Care Homes, says:  “In many care settings, residents with dementia often lose their…

White paper published on the responsible use of Generative AI in adult social care 

Following the AI in Social Care Summit that was held in March 2025, a white paper summarising the Summit’s findings has been published entitled, ‘The responsible use of Generative AI in adult social care: A value led approach.’  The white paper, co-authored by the Oxford Institute for Ethics in AI, the Digital Care Hub and…

Living human brain tissue exposed to Alzheimer’s protein in ‘world first’ 

A British research team has successfully exposed healthy brain tissue from living people to a toxic form of a protein that’s linked to Alzheimer’s disease (taken from people who died from the disease), to show how it damages connections between brain cells in real time in what has been described as a ‘world first’.  The…

Housing LIN seeking best practice examples of age-friendly homes and connected communities

Housing LIN, the Housing Learning and Improvement Network (which is a community of over 15,000 housing, health and social care professionals in England, Wales and Scotland), is seeking best practice examples of age-friendly homes and connected communities.  Housing LIN say:  “It is clear that there is an urgent need for innovative housing policies and solutions…

Film ‘Debunking dementia’ challenges common myths 

A film ‘Debunking dementia: See the person, not the diagnosis’ has been shared by BBC Ideas with the aim of challenging ‘Five myths about dementia’.  Created by Living Words and made in partnership with The Open University, the film features people living with dementia, family carers and professionals.   You can watch the film here: https://youtu.be/JPAKEPj5ebI?si=xX3FwsbQnf1wzoDN