Social care for people living with young-onset dementia: developing resources for improvement Pres Proposal Title Pres Proposal Content Social care and support for people with young onset dementia is central to their quality of life. However, it is seldom well addressed. Services for people with dementia are often designed with older people in mind. Yet people with young-onset dementia and their families require age-specific needs-appropriate services, particularly with respect to social care and support. In this presentation we will talk about the DYNAMIC study which aimed to gain a better understanding of the social care provision for people with young-onset dementia and their supporters and co-produce recommendations and resources to improve the social care provision for this group. Over the first half of the project, we found out about current social care practice and experiences by gathering accounts from people with young-onset dementia and supporters. We also conducted a survey with social care staff. We presented our findings from to stakeholders, via a consultation workshop, to discuss priority areas for improvement. The two areas identified were raising awareness in social care staff of young onset dementia and helping people with young-onset dementia and their supporters to manage the financial impact. Our next steps were to conduct a review of existing evidence on these topics and interview social care practitioners and commissioners to gather examples of good practice in these two areas. We used the information gathered in the previous phases of the study to co-produce resources for social care improvement in the areas of raising awareness of social care staff of young-onset dementia and supporting people to manage the financial impact of young-onset dementia. To co-produce the resources we recruited a small group of diverse stakeholders with a particular interest in the two improvement priorities to act as reference groups and inform resource development. In line with co-production principles the process was tailored to the wishes of the reference groups. This was an iterative process whereby we worked with the groups to come up with ideas which we then turned into a draft resource and returned to the group for further feedback. This process was repeated until the resources were finalised. Proposal Type — not set — Presentation: Presentations offered will usually be for 12 or (in selected cases) 18 minutes. Poster: We welcome posters for digital display at the Congress and on our website. Posters should describe a project. Workshop: We hope to include a small number of interactive workshops of either 30 or 70 minutes Mini-Presentation: A 3-minute silent video with in-person presenter Pres Prop Abstract In this presentation we will talk about the DYNAMIC study which aimed to identify ways to improve social care provision for people with young-onset dementia and their supporters. We explored current social care practice by gathering accounts from people with young onset dementia and supporters and surveying social care staff. We presented these findings to stakeholders, via a consultation workshop, to discuss priority areas for improvement. The two areas identified were raising awareness in social care staff of young-onset dementia and helping people with young-onset dementia and their supporters to manage the financial impact. Our next steps were to conduct a review of existing evidence and interview social care practitioners to gather examples of good practice in these two areas. We used this information to co-produce resources on raising awareness of social care staff of young onset dementia and supporting people to manage the financial impact of young-onset dementia. Lived Experience Julie Hayden and Elaine Daniels are experts-by-experience who are part of our project team. They have been involved throughout the project and have contributed to the design of different aspects of the study and the analysis of data. Pres Prop EDI Consideration of EDI issues has influenced the membership of the steering group and the recruitment of participants for this study. We have had a particular focus on the impact on South Asian communities in our work. We have committed to one improvement area being specifically focused on an EDI-related issue. During our co-production of recommendations and resources, we will ensure that consultees include those with interest and expertise in EDI issues. They will be consulted about both content (e.g. including diverse examples and considerations specific to particular groups in society) and presentation (e.g. ensuring inclusive images and language). Video Clips Yes No Support to present Lead Presenter Name Lead Presenter Job Title Lead Presenter Organisation Lead Presenter Email Co-Authors and Organisations (if relevant) Lead Presenter Biography Dr Catherine Quinn is Associate Professor at the Centre for Applied Dementia Studies, University of Bradford. She leads a module on post-diagnostic support and living well with dementia on the MSc in Advanced Dementia Studies. She is co-Principal Investigator (with Jan Oyebode) on the NIHR-funded DYNAMIC study. Catherine is the University of Bradford’s Healthy Ageing Theme Lead for the Wolfson Centre for Applied Health Research. She is affiliated with the NIHR Policy Research Unit in Dementia and Neurodegeneration University of Exeter (DeNPRU Exeter) and a member of the Older People’s theme of the NIHR Applied Research Collaboration (ARC), Yorkshire & Humber. Lead Presenter Photo quinn.jpg Second Presenter Second Presenter Second Presenter Name Second Presenter Job Title Second Presenter Organisation Second Presenter Email Address Second Presenter Biography Second Presenter Photo Third Presenter Third Presenter Third Presenter Name Third Presenter Job Title Third Presenter Organisation Third Presenter Biography Third Presenter Image
