Community of Practice and podcast episode focus on childhood dementia
The Childhood Dementia Project ECHO® Community of Practice is inviting new members to join its platform.
The Community of Practice is open to any health or care professionals involved in the care of a child or children with dementia. It’s a free, supportive, educational platform that connects experts to learn together about caring for children with dementia.
Find out more and join here: https://www.childhooddementia.org/community-of-practice
The Community of Practice is part of the Childhood Dementia Initiative (located in Australia). As part of the focus on childhood dementia in Australia, Dementia Australia recorded an episode of their ‘Hold the Moment’ podcast about this topic.
The podcast producers say:
“In this episode of our Hold the Moment podcast ‘Childhood Dementia: Holding Onto Hope’, you’ll hear from parents Rachel and Eli who are using their experience to raise awareness about childhood dementia.
We also talk to Megan Maack, founder of the Childhood Dementia Initiative and a parent herself, who is working to connect families, improve healthcare and push for the research that could one day change everything.
This episode is about grief, love and refusing to give up.”
You can listen to the podcast episode here: https://www.dementia.org.au/episode-childhood-dementia.
Watch an extended interview with Rachel and Eli here: https://www.youtube.com/watch?v=4P96aptQh7g