Dementia Alliance International launch ‘Experiences Living with Dementia’ Survey 

The NIHR Policy Research Unit Dementia and Neurodegeneration of the University of Exeter (DeNPRU Exeter) is running two workshops in October with an EDI focus.  On 15 October, those working with minority ethnic communities affected by neurodegenerative conditions are invited to take part in this workshop https://www.eventbrite.co.uk/e/raising-awareness-of-neurodegenerative-conditions-tickets-946418943537?  On 16 October, those with strategic responsibilities for…

A research project from Heriot-Watt University in Edinburgh and charity Scottish Autism entitled ‘Autism, Ageing and Social Care’ has used creative methods to begin a wider conversation about the support that autistic people will need when they get older.  The research team worked with autistic film-makers to create footage about the hopes, concerns and needs…

NHS Digital has published their response to the consultation on Primary Care Dementia Data (that we reported on here: https://journalofdementiacare.co.uk/consultation-open-on-changes-to-nhs-england-primary-care-dementia-data). Information shared includes final decisions regarding this periodical data publication – notably that Primary Care Dementia Data will be published on a quarterly basis (April/July/October/January) rather than a monthly basis going forward – and the…

Alzheimer’s Research UK (ARUK) has thrown its weight behind a multi-sector campaign for the UK government to put prevention at the heart of its levelling up agenda. One of 47 organisations and charities joining the campaign coalition, ARUK says better prevention of dementia, among other conditions, would lay the foundation of a fairer, healthier nation….

Nigel Hullah’s death has been announced by the 3 Nations Dementia Working Group (3NDWG). You can read the announcement here: https://www.facebook.com/groups/340138552838718/permalink/2702852643233952/?mibextid=wwXIfr&rdid=xix5r6Dx8rnITqVn  Nigel chaired the 3NDWG and the statement from Julie Hayden says:  “Nigel was an inspiration to us all and worked tirelessly to make dementia a priority for decision makers at a UK level, national…

The government-based Office for Health Improvement and Disparities has produced a palliative and end of life care factsheet covering dementia as well as other conditions.  The factsheet describes patterns of care near the end of life for four of the six conditions that will be included in the government’s forthcoming Major Conditions Strategy – dementia,…