‘Lived experiences of dementia 2025’ survey report published 

The Alzheimer’s Society has published their ‘Lived experiences of dementia 2025’ survey report. 

The survey was completed by almost 3,500 people affected by dementia, including people living with dementia, unpaid carers and loved ones. Key findings include: 

  • One in five people affected by dementia have received no health care, social care or financial support.  
  • Of those who received support, fewer than half were satisfied with it. Only 29% said dementia-related health care was easy to access. 
  • More than half of the survey respondents believe this situation could be improved if increased support from professional carers trained in dementia was available. 
  • Only one third of respondents reported that their experience of the diagnosis process was positive. Factors that made the diagnosis process difficult included long wait times (52%) and seeing multiple healthcare professionals (41%).  
  • Fewer than half of the respondents were given information about the specific type of dementia they have. 
  • 38% of unpaid carers reported that they don’t feel respected by social care professionals, a figure that rises to 60% amongst carers from ethnically diverse backgrounds. 

Professor Fiona Carragher, Chief Policy and Research Officer at Alzheimer’s Society, says:   

“Almost a million people are living with dementia, yet its scale and the day-to-day realities often remain hidden. These findings tell us that far too many people are going without the help they need – whether it’s support after a diagnosis, trained care professionals, or someone to turn to when things get hard.   

An early and accurate diagnosis is vital to enable people living with dementia to access the care, support and treatments they so desperately need. Those who have been able to access these treatments experienced benefits, but we simply aren’t diagnosing people early or accurately enough to see current and prospective treatments rolled out widely.”  

You can read the report here: https://www.alzheimers.org.uk/sites/default/files/2025-08/AS_report_lived_experiences_of_dementia_survey.pdf 

Similar Posts

  • Gardener visits Lawn

    TV celebrity Alan Titchmarsh gave residents of a Hampshire care home a lovely surprise when he called in on them in his capacity as Deputy Lieutenant of the County. Titchmarsh, gardening expert and novelist, also took the opportunity of his visit to the Lawn, in Alton, to congratulate staff for their hard work during the…

  • New Welsh social care research website launched 

    Social Care Wales has launched Insight Collective, a new website bringing together data, evidence summaries, journal articles, innovation projects, training, events and more.   The website is aiming to support positive developments in social care through research and data, sharing, learning, coaching and advice. It is open to anyone working in or interested in social care…

  • New CST vlog goes live 

    Simon’s Dementia Cognitive Stimulation Therapy (CST) Activities Blog, a free, accessible library of over 250 themed activity pages designed to support ongoing (or maintenance) CST for people with mild to moderate dementia, has launched a vlog.  The YouTube vlog, featuring Simon O’Donovan MBE who is a retired Dementia Nurse Specialist, is aimed at people living…

  • Loving your neighbour

    Staff at a care home run by the Abbeyfield Society celebrated Valentine’s Day “sharing the love” in their local community by giving out gifts.  Speedwell Court sits at the heart of Southampton’s West End, where staff at the dementia-friendly home for 80 residents have been encouraged to create personalised gifts for older people living nearby. …

  • Falls prevention

    Falls are three times more common among care home residents than people of similar age living in the community, but new research published by the British Medical Journal has shown a way to achieve significant improvements. Pip Logan and colleagues (BMJ 7 December) developed and tested the Guide to Action Care Home (GtACH) programme, in…