Report published on ‘data gap’ in dementia care

The King’s Fund has published a report, funded by the Alzheimer’s Society, about the data gap in dementia care.

Entitled ‘Delivering care for people with dementia – why data matters’, the report focuses on how current dementia data provides a fragmented picture of care, and argues for more joined-up, comprehensive data – at both local and national level – to help with understanding people’s needs, achieving better outcomes, and identifying where care can improve.

Helen Gilburt, Fellow at The King’s Fund and author of the report, says:

“Addressing the dementia data gap will be key to successfully implementing the recommendations that emerge from both the Casey Commission and the Modern Service Framework for Frailty and Dementia.

As this analysis finds, there are fundamental gaps in the data that mean our understanding of dementia care resembles a patchwork of insights rather than a clear picture. Lessons should be taken from the Sudlow Review to rectify this alongside addressing the disparity in health and social care data.”

You can read the report here: https://www.kingsfund.org.uk/insight-and-analysis/long-reads/delivering-care-people-dementia-data

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