Two children in the headlines with conditions described as ‘childhood dementia’
Two children affected with conditions described as being like ‘childhood dementia’ have been in the headlines.
Tate, aged 4, has Sanfilippo Syndrome, a severe, rare, genetic, neurodegenerative disease which causes the gradual loss of abilities, such as walking and eating. Tate’s mum has set up a fund aiming to take Tate abroad to participate in clinical trials that could slow down the development of the disease.
Read more here: https://www.bbc.co.uk/news/articles/cwyn20jg3xwo
Oliver, aged 3, has a rare, inherited condition called Hunter syndrome which is a neurodegenerative lysosomal storage disorder that causes progressive damage to the body and brain. Oliver is from California and, in a world first, has received what is described as a ‘revolutionary’ gene therapy in Manchester in a trial University of Manchester researchers are running at the Royal Manchester Children’s Hospital.
Read more here: https://www.bbc.co.uk/news/articles/c5y0y56x6veo