‘Lived experiences of dementia 2025’ survey report published
The Alzheimer’s Society has published their ‘Lived experiences of dementia 2025’ survey report.
The survey was completed by almost 3,500 people affected by dementia, including people living with dementia, unpaid carers and loved ones. Key findings include:
- One in five people affected by dementia have received no health care, social care or financial support.
- Of those who received support, fewer than half were satisfied with it. Only 29% said dementia-related health care was easy to access.
- More than half of the survey respondents believe this situation could be improved if increased support from professional carers trained in dementia was available.
- Only one third of respondents reported that their experience of the diagnosis process was positive. Factors that made the diagnosis process difficult included long wait times (52%) and seeing multiple healthcare professionals (41%).
- Fewer than half of the respondents were given information about the specific type of dementia they have.
- 38% of unpaid carers reported that they don’t feel respected by social care professionals, a figure that rises to 60% amongst carers from ethnically diverse backgrounds.
Professor Fiona Carragher, Chief Policy and Research Officer at Alzheimer’s Society, says:
“Almost a million people are living with dementia, yet its scale and the day-to-day realities often remain hidden. These findings tell us that far too many people are going without the help they need – whether it’s support after a diagnosis, trained care professionals, or someone to turn to when things get hard.
An early and accurate diagnosis is vital to enable people living with dementia to access the care, support and treatments they so desperately need. Those who have been able to access these treatments experienced benefits, but we simply aren’t diagnosing people early or accurately enough to see current and prospective treatments rolled out widely.”
You can read the report here: https://www.alzheimers.org.uk/sites/default/files/2025-08/AS_report_lived_experiences_of_dementia_survey.pdf