The UK Government’s Department for Health and Social Care has announced that genetic sequencing will be conducted on 50,000 samples from the UK Biobank in a collaboration with Oxford Nanopore Technologies, a life science company, to create an ‘epigenetic map’ of the human genome to improve understanding of conditions including dementia. The Department for Health…
Care England has collaborated with Oak House Kitchen to produce a white paper on dysphagia. The paper looks at best practice for supporting people with dysphagia, a condition that is estimated to affect four million people and often develops as a person lives with dementia. You can read the white paper here: https://www.careengland.org.uk/wp-content/uploads/2024/11/Care-England-x-OHK-White-Paper-_-Nov24_-digital.pdf
Thank you, Dementia Community I really enjoyed the Congress this year. Great venue…lots of space, good straightforward food, loads of coffee…so much so I was awake half the night! But that’s my fault! What I value so highly about Congress is meeting so many people in person, having hugs, and just all the smiling. It…
Researchers from the University of Suffolk are looking for 25 people to trial Snapshot Boxes in social care settings. Snapshot Boxes, created by Suffolk firm Chronicle, are photo frames that play voice recordings, enabling a person with dementia to view photos alongside the voices of loved ones. The trial is part of a six-month research project,…
The Lewy Body Society has celebrated five years of funding Rachel Thompson’s role as the UK’s first Consultant Admiral Nurse for Lewy body dementia. Jacqui Cannon, CEO of Lewy Body Society, says: “We are so proud to have been funding this vital role for five years, it feels like a real milestone in the care of such a…
The Coalition of Frontline Care for People Nearing the End of Life has published a report entitled: ‘End of Life is Everyone’s Business.’ The report talks about how many people die with age-related conditions – with dementia as the UK’s leading cause of death – and that numerous families try to cope at home until a…
Nuffield Trust has published a report entitled: ‘What needs to improve for social care to better support people with dementia?’ The report looks at the current gaps and challenges with providing good social care for people with dementia in England, and makes recommendations about what needs to change to improve social care for people with…
Carers UK has published ‘State of Caring 2024 – The state of caring on employment’ and (with Centre for Care), ‘Valuing Carers 2021/22: The value of unpaid care in the UK.’ State of Caring 2024 documents the challenges of trying to work whilst being an unpaid carer, and makes a series of recommendations for Government,…
In the Tom Kitwood Memorial session at the UK Dementia Congress (Coventry, 26 November 2024) we were reminded of Tom’s words: “He didn’t talk about truth and lies but about genuineness and treachery – emphasising that it is the intent that matters.” Jane Murray, an experienced nurse and assistant professor at the University of Northumbria,…
In a packed plenary session at the UK Dementia Congress in Coventry on 27 November 2024, Dr Jeremy Isaacs, consultant neurologist, St George’s Hospital and Kingston Hospital, and National Clinical Director for Dementia and Older People’s Mental Health, NHS England, set out his priorities and ambition. He emphasised that prevention – delaying the onset of…