Bruce Willis’ wife, Emma, has announced plans to publish a book (currently untitled) in 2025 about her experiences as a carer to Bruce who lives with frontotemporal dementia. Emma said of her experiences of her husband’s dementia diagnosis: “For many people, their first touch point about this disease is received in their doctor’s office. I…
A study published in The Lancet Healthy Longevity has shown that NIDUS-Family (New Interventions for Independence in Dementia Study) helps people with dementia and their family carers reach personal goals. Participants worked with a facilitator to set their personal goals to live independently at home for as long as possible, and these were then mapped…
Chris Suich, whose husband Bob has dementia, has created a kit to help carers and families affected by dementia. The kit, Bob’s Brainwaves, includes ideas to support a person with dementia to live at home for longer, as well as important documents and forms. The local signposting that’s included is focused on Louth, Lincolnshire, alongside…
It has been announced by pharmaceutical company, Biogen, that Alzheimer’s drug aducanumab (commercially known as Aduhelm) will be withdrawn from use by November 2024. Biogen say this isn’t due to any safety or efficacy concerns. Aducanumab was offered to people living with Alzheimer’s in the US from June 2021, but was not approved for use…
The National Institute for Health and Care Research (NIHR) Policy Research Unit are looking for people with dementia (of any type) to join their Policy Research Unit to help shape their work. Involvement opportunities are varied and participants are paid for their time. You can find out more by contacting Rachael Litherland from Innovations in…
Alzheimer’s Disease International (ADI) has announced its participation in and launch of the AD-RIDDLE project. The project is a collaboration between academics, healthcare providers, pharmaceutical and diagnostic companies, regulatory bodies and patient advocacy organisations. It aims to improve detection, diagnosis and prevention of Alzheimer’s disease and, whilst initially focused on European countries, it’s hoped it…
Labour has announced plans for a life sciences sector strategy, with an emphasis on clinical trial participation to help find new treatments for conditions including Alzheimer’s disease. The plan would include establishing standing national registries for clinical trials, boosting public participation in clinical trials, and making better use of data. You can find out more…
The Alzheimer’s Society have opened their funding rounds for researchers to obtain grants. You can find out more here https://alzheimers.org.uk/research/researchers/grants and apply through the Alzheimer’s Society portal here: https://grants.alzheimers.org.uk The deadline for applications is 22 March 2024.
The Royal College of Speech and Language Therapists, Rare Dementia Support, and Dyscover have called on the Government and NHS England to reinstate the National Hospital for Neurology and Neurosurgery (NHNN)’s speech and language therapy (SLT) service, which closed in 2023. In their letter to the Secretary of State for Health and Social Care,…
Wellcome, a charitable foundation focused on health research, has announced a targeted funding programme for researchers of Black, Bangladeshi and Pakistani heritage in the UK to stay in research and advance their careers. From their data and insight work Wellcome have identified these groups as underrepresented, and they are keen to encourage the diversity of…