‘Childhood Dementia in Scotland 2025’ report published
A report has been published entitled, ‘Childhood Dementia in Scotland 2025’.
The report has been produced by Childhood Dementia Scotland, a collaborative network that spans Scotland and the wider UK and is hosted by Alzheimer Scotland, who originally set up Childhood Dementia Scotland in 2024.
The network comprises family members, advocacy organisations, researchers and health, social care and education professionals. It aims to raise awareness of childhood dementia, help support and give a voice to people with lived experience of dementia in children, improve the response from professionals, and encourage research into the conditions (over 145 rare genetic disorders which are progressive and life limiting) that cause childhood dementia.
Jim Pearson, Alzheimer Scotland’s Deputy Chief Executive and Chair of Childhood Dementia Scotland, says:
“Childhood dementia is poorly understood and because of this remains largely invisible within our health, social care and education systems. This report puts childhood dementia into the spotlight. It shares the experiences of families and children living with childhood dementia and sets out key actions Scottish Government can implement to change that.”
You can read the report here: https://www.alzscot.org/wp-content/uploads/2025/12/Childhood-Dementia-Report_web.pdf
Find out more about childhood dementia from Alzheimer Scotland here: https://www.alzscot.org/what-is-dementia/types-of-dementia/childhood-dementia/