We are delighted to bring you this special issue of the Journal of Dementia Care looking at equality, diversity and inclusion (EDI) in dementia care. Inequality and discrimination are regrettably still commonplace in the care system, both in access to services and health outcomes. To help address this, prompted by Lucy Whitman and other members of the…
This issue of the Journal of Dementia Care was edited by Lucy Whitman and David Truswell with support from Karan Jutlla, Toby Williamson, Jennifer Lim and Jude Sweeting. All of us are members of the Dementia Community EDI working group (a sub-group of the Dementia Community Advisory group with a special interest in EDI). The…
Welcome to this special, unique issue of the Journal of Dementia Care, focusing on Equality, Diversity and Inclusion (EDI). Why do we need a special issue? Since 2013, when the landmark report of the All Party Parliamentary Group on Dementia, Dementia does not discriminate, was published, numerous further reports have been written, demonstrating that people…
Williamson T (2023) Putting EDI into practice – key principles and guidelines. Journal of Dementia Care 31(5)12-15. What do the terms equality, diversity and inclusion (EDI) mean in dementia care, what is their legal basis and how can they be effectively implemented? Toby Williamson and colleagues explain the key terms and principles and provide practice…
Lim JNW (2023) Engaging with UK Chinese communities about dementia.Journal of Dementia Care 31(5)26-28. Author Details Dr Jennifer NW Lim is senior lecturer in public health, researching on health inequalities in accessing care and services for people from culturally diverse backgrounds, at the University of Wolverhampton Talking about “brain health” rather than “cognitive deterioration” may be…
Manthorpe J (2023) Diversity and inequality in dementia care. Journal of Dementia Care 31(5)15-17 There are notable inequalities both among people living with dementia and within the dementia care workforce. Jill Manthorpe explores the many social factors that can determine people’s experience of dementia and dementia services, and argues that reducing inequalities needs to be…
Amanze R (2023) The Blue Road to Recovery. Journal of Dementia Care 31(5)18-19. Ronald Amanze (aka Ronald Ferguson) is writing a book about his life with dementia, with help from David Truswell. Here is an edited extract from Chapter 2: The Blue Road to Recovery. I want to be honest about my experiences and what I feel. Especially as someone…
Whitman L (2023) Portrait of a researcher. Journal of Dementia Care 31(5)19-20 Teresa (Dory) Davies was diagnosed with dementia 11 years ago and is a Dementia Pioneer, one of a group of people living with dementia leading the Dementia Enquirers programme She told Lucy Whitman how dementia has ‘given me wings!’ I was 59 when…
Brar-Orgill J (2023) Caring without culturally appropriate support. Journal of Dementia Care 31(5)20-21 Jagdish Brar-Orgill describes caring for her mother with dementia at a distance without culturally appropriate support, and shares the pain of her mother’s last days in a hospital ward without compassionate end of life care. A year after my husband and I…
Whitman L (2023) Once I had a secret love. Journal of Dementia Care 31(5)22. Pauline and Hilary Nowell talk to Lucy Whitman about the value of “rainbow” support groups for LGBTQ+ people affected by dementia Since Pauline’s diagnosis with vascular dementia in 2019, she and her wife Hilary have received excellent personalised support from their…