Dementia Carers Count share a collection of dementia carers’ experiences
Dementia Carers Count (DCC) has followed up their ‘What if…I’m not there to care?’ report (which we covered here: https://journalofdementiacare.co.uk/dcc-publish-their-2024-survey-findings) by sharing a collection of dementia carers’ experiences.
Dementia Carers Count brought this collection together having invited dementia carers to share their personal experiences of not having alternative care arrangements in place, their struggles to continue caring and their worries.
DCC have shared these experiences with those responsible for supporting dementia carers in England, Scotland and Wales.
Helen Pyper, Head of Policy and Campaigns at Dementia Carers Count, says:
“Each nation must fully implement a carers’ strategy which outlines carers’ rights and what support they should receive. This should include provision for regular, proactively offered and frequently reviewed, assessments of carers’ needs and plans for contingency or alternative care. All adult social care must be sustainably resourced to enable delivery of personalised support. What exists on paper must be delivered in practice.”
You can read DCC’s collection of dementia carers’ experiences here: https://dementiacarers.org.uk/content/uploads/2025/05/Sharing-the-experiences-of-dementia-carers.pdf