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New report: Creating a Britain that Works and Cares
ByJDCteamThe Centre for Social Justice has published a report entitled: ‘Creating a Britain that Works and Cares’ which looks at how to support family carers in employment. The report draws on statistics from a national survey of unpaid working-age (16-64 year old) carers that was conducted in November 2023 by The Centre for Social Justice…
Diagnosis rates
ByJDCteamDementia diagnosis rates have “stagnated” since the pandemic, Alzheimer’s Society has said, calling on people to contribute to a new parliamentary inquiry that seeks to find out what the barriers are to a diagnosis. The inquiry, by the All-Party Parliamentary Group (APPG) on Dementia, will consider how diagnosis rates slumped to 62.5% in December, compared…
Survey launched to understand hearing and dementia research priorities
ByJDCteamThe James Lind Alliance Priority Setting Partnership (PSP) has launched its second survey to gather information on hearing and dementia research priorities. They are looking for people who are deaf, or have hearing loss, tinnitus, hyperacusis or vestibular disorders, people with memory problems, family carers, health and social care professionals and members of the public…
Funding call extended for Dementia Healthcare Inequalities Initiative
ByJDCteamAs recently reported https://journalofdementiacare.co.uk/inequalities-initiative-funding, the Alzheimer’s Society has opened a funding call for research proposals that tackle healthcare inequalities for people living with dementia and their carers. The deadline for expressions of interest has now been extended to 23 September 2024 to allow more researchers with ideas to tackle inequalities in dementia diagnosis and post-diagnostic support to apply. …
People with lived experience of dementia wanted to shape new DCAN strategy
ByJDCteamThink Local Act Personal (TLAP), who host the Dementia Change Action Network (DCAN), are developing a new strategy for DCAN. It is intended the strategy will be shaped by insights on the current lived experience, aspirations and ideas of people living with dementia, their families and friends. Find out more from TLAP here: https://thinklocalactpersonal.org.uk/news/personalising-dementia-support-building-a-strategy-on-lived-experience/ Find…
Dementia Carers Count share a collection of dementia carers’ experiences
ByJDCteamDementia Carers Count (DCC) has followed up their ‘What if…I’m not there to care?’ report (which we covered here: https://journalofdementiacare.co.uk/dcc-publish-their-2024-survey-findings) by sharing a collection of dementia carers’ experiences. Dementia Carers Count brought this collection together having invited dementia carers to share their personal experiences of not having alternative care arrangements in place, their struggles to continue…