The Palliative and End-of-Life Care Commission has published its first report, entitled ‘Palliative Care and End-of-Life Care – Opportunities for England (Volume 1)’. The report finds that access to high-quality palliative care is unevenly provided across the UK, and makes the case that everyone who has palliative care needs should be able to access well-resourced…
‘Unlocking the Power of Proactive and Preventative Care Services – A practical blueprint for planning, implementing and scaling up’ has been published by a new national Commission led by the Association of Directors of Adult Social Services (ADASS) and the TEC Services Association (TSA). The Commission engaged with 50+ social care leaders from local authorities…
Dementia UK has published their programme for their 2025 Summer School. Running from 1-4 July 2025, the Summer School is a free annual event aimed at improving practice in and knowledge of dementia care. Topics being covered in 2025 are diverse and include managing and assessing pain, young onset dementia, technology to support families and…
V for Life, the UK charity working on behalf of older vegetarians and vegans, has used Dementia Action Week to highlight their Self-Advocacy Pack. The Self-Advocacy Pack has been designed to help vegetarians and vegans safeguard their diet and beliefs if they need to draw on care services. V for Life say: “Around 70 per…
A new website – Dementia Journeys – has been launched to explore what better end-of-life dementia care looks like based on research. Central to the website are stories from carers that were originally shared during an exhibition that ran at the Science Gallery, London from April-June 2024. The exhibition was created in response to Empowering…
John ‘Pops’ Hyde and his granddaughter Ariana are using YouTube to raise awareness of dementia in a series of videos that are making headlines on national TV. John was diagnosed aged 59 with frontotemporal primary progressive aphasia. John makes videos with his 10-year old granddaughter, Ariana, adding them to their YouTube channel. You can watch…
Following the announcement in January that there will be an independent commission into adult social care chaired by Baroness Louise Casey (we reported on this here: https://journalofdementiacare.co.uk/uk-government-announce-casey-commission-into-adult-social-care), the UK Government has now published the Terms of Reference for the Commission. You can read the Terms of Reference here: https://www.gov.uk/government/publications/independent-commission-into-adult-social-care-terms-of-reference/independent-commission-into-adult-social-care-terms-of-reference Commenting on the Terms of Reference,…
The Lewy Body Society has awarded almost £600,000 in research grants to the University of Cambridge, University of Dundee, University College London and Queen’s University Belfast for studies into Lewy Body Dementia. Jacqui Cannon, Chief Executive of the Lewy Body Society, says: “We are excited about the possibilities of these four research projects and what…
Hamberley Care Homes has launched a new Dementia Strategy entitled ‘Bringing Out the Best’. The strategy, which has been co-produced with residents, families, and team members, is structured on a five pillars of care model. David Moore, Head of Dementia at Hamberley Care Homes, says: “In many care settings, residents with dementia often lose their…
Following the AI in Social Care Summit that was held in March 2025, a white paper summarising the Summit’s findings has been published entitled, ‘The responsible use of Generative AI in adult social care: A value led approach.’ The white paper, co-authored by the Oxford Institute for Ethics in AI, the Digital Care Hub and…