The Guardian has published an article entitled: ‘‘You’re treated like this is the end’: Meet the dementia rebels – diagnosed and determined to change people’s minds’. The article features Maxine Linnell, Julie Hayden, George Rook and Kate Swaffer – who are all living with dementia – and references the work of Tom Kitwood amongst many…
The UK Government has announced a new service entitled ‘Diagnosis Connect’ to complement existing NHS care. Diagnosis Connect will refer patients to specialist charities and support organisations as soon as they are diagnosed with a condition. The aim is for people to obtain personalised advice, information and guidance to help them manage their condition better. …
The Lewy Body Society has used World Alzheimer’s Month to highlight ongoing challenges around diagnosis for people with Lewy body dementia symptoms. The Lewy Body Society say that in England up to 110,000 people are estimated to have Lewy Body dementia yet only 15,000 are recorded with a diagnosis. Jacqui Cannon, Chief Executive of The…
Dementia Alliance International (DAI) has launched a webinar series about dementia inclusive environments. The aim of the webinar series, curated by the DAI Environmental Design Special Interest Group, is to raise awareness and share global knowledge and skills in designing inclusive environments for people living with cognitive impairments and dementia. The first webinar was delivered…
A new “Living with Dementia Toolkit,” drawing on the findings of a major research project led by Exeter University, offers advice, resources and personal accounts in what adds up to a comprehensive guide to living as well as possible with the condition. The toolkit, launched at the ESRC Festival of Social Science in November, originated…
Further to The National Institute for Health and Care Excellence (NICE) publishing draft guidance for public consultation about Alzheimer’s treatments donanemab and lecanemab (that we reported on here: https://journalofdementiacare.co.uk/nice-publish-further-draft-guidance-on-lecanemab-and-donanemab), NICE has published final draft guidance that continues to not recommend donanemab and lecanemab for use on the NHS. Explaining the decision, Helen Knight, NICE Director…